UK Voluntary Information Exchange and Contact Register Following Donor Conception Pre 1991

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HAVE YOUR SAY – MAJOR HFEA REVIEW OF DONATION POLICIES

Over the summer and autumn of 2010 the HFEA will be reviewing a number of its policies relating to sperm, egg and embryo donation. The aim of the review is to ensure HFEA policies facilitate safe and effective donation while protecting the interests of people affected by donation - donor conceived people, donors, parents and recipients.

A public consultation will take place between October and December this year with final decisions being made in March 2011.

The policies to be reviewed include:
· the number of families donors can donate to
· expenses and compensation donors can receive for donation
· donation between family members
· the restrictions which donors can place on the use of their gametes or embryos

Take part in the review

These policies will have an impact on future donors, recipients and donor conceived people. It is therefore crucial that these groups have the opportunity to feed into the review. If you're a donor-conceived person, parent of a donor-conceived person, a donor, or have considered donation, the HFEA would like to hear your views.

If you would like to participate in this review, by providing your views on donation policies, please email donationreview@hfea.gov.uk with your: 
· name
· contact details
· an indication of how you are affected by, or interested in, donation (e.g. donor, have considered donation, general public)

This information will allow us to send you information relevant to your interest in the donation review.

We will be seeking views through a variety of methods, including a written consultation document, consultation events, focus groups and one to one interviews. Confidentiality will be maintained throughout the consultation and you will be given the opportunity to contribute your views anonymously.

A detailed outline of the methods and plan for this review can be found at - http://www.hfea.gov.uk/docs/2010-03-24_Authority_-_complete_papers.pdf

…………………………………………………………………….

Alan Tipping
Stakeholder Relations Manager
Human Fertilisation & Embryology Authority
21 Bloomsbury Street , London , WC1B 3HF
Direct Line: 020 7291 8233
Mobile : 0776 676 3091
Fax: 0207 291 8201
Email: alan.tipping@hfea.gov.uk
Website: www.hfea.gov.uk

Have the latest news from the HFEA delivered every month to your inbox by subscribing to our e–update service at www.hfea.gov.uk/e-updates

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Please find Annual Report for UKDL for 2008/2009 by clicking here

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The Mail on Sunday published an article about the work of UK Donor Link on 21st February 2010.

It quoted parts of the press statement that Paul Dyson , Interim Chief Executive, issued to the Mail on Sunday.

Attached is the full press statement - Click Here To View.

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BBC Documentary – can you help?
We are making a BBC Documentary and are looking to talk to donor-conceived people who are interested in searching for their half-siblings.

Our aim is to make an intelligent and informative documentary. We believe passionately that the subject is an important one and we hope that it will help to get many of the issues around donor conception into the public sphere.

At this stage conversations are for research purposes only and will be treated in the strictest confidence.

If you are interested in talking, please contact: shona.thompson@dragonfly.tv or call on 07956 486 666

I very much look forward to hearing from you.

Shona Thompson
Dragonfly TV

UKDL ANNUAL REPORT 07-08

Please find a shortened Annual Report for UKDL for 2007-08. This format has been agreed by the Board of Trustees for the years 07-08 because of the unexpected death of the UKDL Co-Ordinator.

Click here to view the paper as a word document


October 2008
HFEA Annual Conference


Here is the text of the paper given by our Advisor, Marilyn Crawshaw, at the HFEA Annual Conference on 13th October 2008.

Marilyn was invited by the HFEA to contribute to the session on Opening the HFEA Register and to outline some of the key aspects of UKDL's experience that might assist the HFEA in their Register work.

Click here to view the paper as a word document

The New Human Fertilisation and Embryology Bill Briefing Note from UK DonorLink

Please find attached the submission to the draft Bill submitted earlier this week by UK DonorLink.   This paper is based on our work as the only Register in the country.  This briefing paper is informed by the experience and knowledge gained over the last four years of working with people who have been given the opportunity to trace and meet their half siblings or donors.


September 2007

Human Fertility Document

June 2007

UK DonorLink Submission to Scrutiny Committee Document

June 2007
The Government has now published the draft Human Tissue and Embryos Bill. Click here to Access

February 2007
Briefing Paper on Key Organisational Features


Annual Report 2006
Read about the work UKDL has undertaken from July 2005 to 30th June 2006.
The annual report covering July 2006 to June 2007 will be available as soon as possible after the end of our annual reporting year.


New Y Chromosome Testing

Male registrants – sperm donors and donor conceived adults can have an Y chromosome test. This reveals a DNA strand only present in males and inherited directly on the family line from father to son. This should make identification of genetic matches from father to son, and half sibling to half sibling easier.

Information for People who donated after : August 1991

What to do if you were a sperm/egg donor who donated after August 1991

DC Network Telling and Talking Materials

DC Network is a self help network of parents and families created with the assistance of donated eggs/sperm/or embryos. The Telling and Talking series of materials give detailed advice and information for the parents of donor conceived children from their earliest years to adulthood about how to tell children of their genetic origins.

A generous donation, Guardian Newspaper, Saturday, 11 March 2006

Will Calder talks about his experiences of being a sperm donor between 1987 and 1991.

BBC Website Article : November 2005


UK DonorLink, 31 Moor Road, Headingley, Leeds, LS6 4BG